May seventeenth two
thousand sixteen.
Everybody has those ‘unforgettable
days’
The day BD & I
were married.
The day Emmery Lo was
born.
The day Trenton TD
was born.
May seventeenth two
thousand sixteen
Unforgettable in ways
I still yet can’t understand.
The day, while at
Taco Tuesday,
Our pediatrician
called.
What pediatrician
calls at 6pm?
I didn’t answer.
He called BD.
He answered.
The phone call I
never want to relive.
Dr. Cater had to let
us know,
Trenton TD Mertens
Has Cystic Fibrosis
CF
What?
How?
Why?
Honestly, neither of
us really knowing what it was.
What is CF?
CF is a progressive,
genetic disease that affects
the lungs &
digestive system.
What?
How?
Why?
For the next 24 hours
I googled and googled
any and everything about
CF
Not finding answers I
wanted.
With the hope it was
a mistake.
May eighteenth two
thousand sixteen.
The confirmation.
Trenton TD Mertens
Delta f508
{two gene mutations
of CF}
One from me.
One from BD.
Why?
Obviously, God has a
plan for us far before we knew it.
Two kids from CO
Meet in NE
Fall in love.
Get married.
Each with the f508
gene mutation.
Have a daughter, who
may be a carrier.
Have a son.
confirmation of CF
at 3 weeks old.
So, what’s next?
In three short weeks
We’re moving to
Montrose, CO
A plan that has been
in place since January.
BD will coach &
teach.
I will be a school
counselor.
Trenton will still
have CF
He will still need
treatments & medications
Colorado is a leading state in
Research and treatment
for those who have CF?
God knows exactly
what He is doing.
He will put together
a team of doctors for TD
In Colorado, just
like He did here in California.
My hope and prayer is
to continuing blogging
To let those know how
‘normal’ our lives will stay.
A new ‘normal’ of medicines,
treatments, & doctor appointments
Encouraging our children
to do whatever they want.
Run.jump.skip.
Play in the mud,
basketball, football, do anything they want.
This certainly isn’t
the journey we would have chosen for TD,
But it’s the journey
God chose for us.
It’s a blessing.
God made Trenton
exactly how He wanted him.
It’s our joy, honor,
& blessing to be chosen to be his parents.
We don’t know what
the future holds,
It looks bright.
We take it
day by day
Appointment by
appointment.
What we do know
No comments:
Post a Comment