So, yes I wanted to
updated more
regularly,
But
with moving out of
our house on
Saturday,
{6.4.16}
{another post for
another day}
It’s been a little
c.r.a.z.y.
both kiddos are
napping in separate rooms
{woot woot}
I thought I would
update on
Truck.
Rewind three weeks,
Truck had his first
‘procedure done’
a sweat test
{to confirm CF}
Which was already
confirmed through genetic testing,
but is a requirement
of health care.
He was a trooper!
Since no needles were
involved
it wasn’t that hard.
However, my heart did
ache.
When I walked into
the lab of Children’s hospital.
This is a new normal.
Walking into
hospitals.
Not to visit friends
who have had babies,
But actually taking
my own baby
for labs
appointments
&
possibly overnight stays.
We had our second
clinic appointment
we learned about
chest physical therapy
{a.k.a CPT}
Nebulizers
&
More about our new ‘home
base” in
Colorado.
God never seems
to amaze us.
as we feel so loved,
and supported
not only by our
friends & family,
but a family in Colorado
{our care team}
That we've never met
but seems to already
love and care for
TD.
The CF community is a
small one.
Only about 30,000
people in the US have
CF
We feel that the care
teams
actually care not
only for us,
but about us.
Trenton has been
doing
g.r.e.a.t
He’s a trooper.
he has enzymes he has
to take
{with applesauce-
gasp!—this is another post!}
daily salt in take
CPT
&
vitamins.
Lil’ miss emmery lo
has been a
rockstar big sister
sometimes wanting to
help with CPT
helping out with
diapers
&
loving
Truck.
she even has been tested for CF
which we know now she is a
carrier of
deltaf508.
in less than a week
we’re heading out
east
to start a new
journey,
God has planned.
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